Wednesday 9 March 2011

We are really pleased, we got a letter from our consultant on the 4th of this month to say that Harvey's heart, that had been monitored by Ultra Sound last month, is fine and is working normal.
Some Wolf Hirschhorn children are born with heart defects, so we are so glad that Harvey has been given the all clear with his heart.
Harvey has also recently been prescribed a sedative medicine, to bring him round from his epilepsy fits, which is good news, As its such a stressful time when Harvey's fits happen.
Harvey hasn't had a Epilepsy seizure for 10 weeks now which is good but nerve racking due to it not being normal, but if Harvey was to have a seizure and the medicine was administrated, then it should bring him round, but we have been advised to call an Ambulance on the first occasion, just for piece of mind.
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3 comments:

  1. Kristen9 March 2011 at 19:18

    Awesome news about his heart!!!! Alexander has an ASD, VSD, and Pulminary Stinosis - which - in God's plan all work together to not cause big problems - but your Harvey is BLESSED to not have heart issues!!!!! Have Cake tonight to celebrate! Also - did you get Diastat? or Valium? That is what we use here in the states. It has worked well for Alexander's seizures. Also.... we called our local ambulance. Here - if you call the Ambulance and they don't transport him to the hospital, you pay out of pocket. We don't like Alexander to go to the hospital, so we usually decline the trip to the hospital. We just want EMT's to check him out. Our Ambulance company allows us to make a "donation" and then they reduce our fee by 1/2 each time we would have to pay out of pocket. I don't know how things work over there - but it might be something to look into. He has great kissable cheeks!

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  2. Anna19 March 2011 at 22:47

    Hi there,
    I found your blog through Kristens! Harvey is beautiful!! We have a son Ryley who is 9 years old! You can find our blog through my profile thingy if you like! Lovely to meet another WHS family! Anna.

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  3. Smilen Champ3 August 2011 at 14:55

    Hi Harvey and His Mommy
    My name is Jenna and I came across your site. Harvey is a courageous,strong, and determined fighter. He is a brave warrior, smilen champ and an inspirational. I was born with a rare life threatening disease, and 12 other diagnosis. I also have blackouts which are sort of seizures. I love it when people sign my guestbook. www.miraclechamp.webs.com

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