We are really pleased, we got a letter from our consultant on the 4th of this month to say that Harvey's heart, that had been monitored by Ultra Sound last month, is fine and is working normal.

Some Wolf Hirschhorn children are born with heart defects, so we are so glad that Harvey has been given the all clear with his heart.

Harvey has also recently been prescribed a sedative medicine, to bring him round from his epilepsy fits, which is good news, As its such a stressful time when Harvey's fits happen.

Harvey hasn't had a Epilepsy seizure for 10 weeks now which is good but nerve racking due to it not being normal, but if Harvey was to have a seizure and the medicine was administrated, then it should bring him round, but we have been advised to call an Ambulance on the first occasion, just for piece of mind.